| admin@pwsa.co.uk | |
| Website | http://www.pwsa.co.uk |
| Telephone | 01332 365676 |
| Fax | 01332 360401 |
| Address | Suite 4.4 Litchurch Plaza Litchurch Lane Derby Derbys DE24 8AA |
| Contacts |
|
| Purpose | The PWSA (UK) is a national charity with its headquarters in Derby. It aims to support people born with Prader-Willi Syndrome and their parents and carers, as well as the professionals who work with them. It offers a wide range of leaflets (mostly free) about all aspects of PWS, telephone support and in house training. An East Midlands regional support group meets about three times a year in Derby. Membership is by donation and is open to anyone with a personal or professional interest. |
| Services | Telephone support. Leaflets, information on managing PWS. Website. In-house training for organisations working with someone with PWS. Newsletter and e-news. AIM award in PWS. Conferences. Family days and weekends. |
| What they do |
|
| Who they work with |
|
| Geographical area coverage | South Derbyshire,Derby City, National, Part(s) of Derbyshire |
| Space for Hire | No |
| Opening Times | Usual office hours - Mon to Fri 9.00-5.00. Family events and conferences usually take place at weekends. |
| Eligibility Criteria | Anyone affected by Prader-Willi Syndrome, whether directly or indirectly. |
| Meeting Place | Telephone support from Derby office. Family events and conferences UK wide. |
| Service Costs | Membership £25, conferences and training variable. No charge for telephone support and most leaflets. |
| Is a registered charity? | Yes |
| Charity Number | 1155846 |
3717 groups
The voluntary groups, organisations, social clubs, charities, social enterprises in this directory are all based in - or work within - Derby and Derbyshire.
The directory is maintained and contributed to by a network of 13 organisations across the region.
If you are already listed on the directory you can manage your own data online. If you are not yet listed, then add your group now!
